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Behind the scenes, however, he has been quietly battlingsickle cell disease, an inherited blood disorder that leads to abnormally shaped red blood cells, causing severe pain, anemia, and potentially life-threatening complications. It affects children who inherit two copies of the sickle cell gene, one from each parent.

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Larry Madowo: Why are you speaking up aboutsicklecell disease now and especially being very aggressive about this awareness?

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Larry Madowo: Are there any memorable things that you’ve come through during your advocacy work when people are not even aware of what they’re facing?

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Larry Madowo: What are some of the barriers to receiving proper care forsickle cell patients in West Africa? In Nigeria?

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Larry Madowo:You’re the embodiment that you can livewith sicklecell and have a full, healthy, and powerful life. Will you keep talking about this in your music and your public appearances with your shows?

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